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Carlow CF sufferer says Orkambi drug would make huge difference to her life

MaryAnn Vaughan by MaryAnn Vaughan
18/10/2016
in KCLR News, News & Sport
Carlow girl appeals to HSE for Cystic Fibrosis drug to be made available
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A local Cystic Fibrosis sufferer says Orkambi would make a huge difference to her life.

Maria Delaney is part of a group of people who have come together to set up a pop-up chic fashion shop on the Potato Market in Carlow to raise money for CF Ireland and Carlow Hospice.

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Talks between the HSE and the company Vertex, which makes the CF drug, Orkambi have been underway since August.

At the moment it would cost €160,000 per patient per year and the health service are trying to negotiate that down.

Speaking on KCLR Live today, Maria says she would love to be able to access it.

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