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“Best birthday present ever” says Carlow Cystic Fibrosis sufferer after Orkambi announcement

KCLR96FM News & Sport by KCLR96FM News & Sport
12/04/2017
in KCLR News
Carlow CF patient says Orkambi deal would be life-changing for her and other sufferers

Kelsey Nolan was a guest on KCLR Live in April 2016

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A Carlow Cystic Fibrosis sufferer says yesterday’s announcement by Simon Harris was “the best birthday present ever”.

Kelsey Power-Nolan, who turns 21 this weekend, has been campaigning for the drug Orkambi to be made available in Ireland.

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Health Minister Simon Harris announced last night that the HSE has reached a deal with pharmaceutical firm Vertex to provide the groundbreaking drugs to about 600 people in this country.

Speaking to KCLR News this morning, Kelsey says she was over the moon when she found out.

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