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Late Nite Live, coming to Ballinabranna GAA Club! Late Nite Live, coming to Ballinabranna GAA Club! Late Nite Live, coming to Ballinabranna GAA Club!
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Carlow Cystic Fibrosis sufferer welcoming news that Orkambi will be available for children

MaryAnn Vaughan by MaryAnn Vaughan
16/03/2018
in KCLR News, News & Sport
Cystic fibrosis campaigners shocked at the HSE’s decision not to fund Orkambi
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A local Cystic Fibrosis sufferer says news that the drug Orkambi will now be available to children is fantastic.

The Department of Health has announced that patients aged from six to 11 can now access the life-changing medicine.

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It means Ireland becomes one of the first countries in the EU to provide the drug to this age category.

21-year-old Carlow woman, Kelsey Nolan, first got to take the drug last year and she says it’s changed her quality of life hugely.

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Speaking to KCLR News, Kelsey says this is an extremely positive development and the drug has made such a huge difference to both her life and the life of her little brother, who has been taking it for six months now.

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