Carlow Cystic Fibrosis sufferer welcoming news that Orkambi will be available for children
Patients aged from six to 11 can now access the life-changing medicine.
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Tag: orkambi
“Best birthday present ever” says Carlow Cystic Fibrosis sufferer after Orkambi announcement
Kelsey Power-Nolan, who turns 21 this weekend, has been campaigning for the drug Orkambi to be made available in Ireland.
Carlow CF patient says Orkambi deal would be life-changing for her and other sufferers
The HSE have entered what's being called the "final stages" of talks to agree the price for the groundbreaking drug.
Carlow Cysitc Fibrosis sufferer says breakdown in Orkambi talks hugely disappointing
This week the HSE and the makers of the drug failed to reach an agreement in price talks that have ...
Carlow CF sufferer says Orkambi drug would make huge difference to her life
Talks between the HSE and the company Vertext, which makes the CF drug, Orkambi have been underway since August.
Carlow girl appeals to HSE for Cystic Fibrosis drug to be made available
A young woman from Carlow is calling once again on the HSE to make Orkambi available to Cystic Fibrosis sufferers. ...
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