KCLR Live: Minister John Paul Phelan Thoughts on Spinraza and New Media Ban from SPC Meetings
Wednesday 12th June Minister John Paul Phelan joined Eimear Ní Bhraonáin today to speak about the newly approved drug 'Spinraza'. ...
Tag: spinraza
Delight for Kilkenny family as HSE finally gives approval for Spinraza
A Kilkenny family is celebrating the news they have been waiting for after HSE approval was given for Spinraza. Isaac ...
Spinraza gets green light: Kilkenny family among those set to benefit as HSE approve drug
Today is the day the HSE leadership team meets to decide if it will approve the drug for Spinal Muscular ...
Kilkenny mother says HSE decision on Spinraza is ‘a slap in the face’
Director General of the HSE Paul Reid told an Oireachtas Committee yesterday (Wednesday) that the drugs committee have gone through ...
KCLR Live: MRI Will Be Delivered Promises Harris
Health Minister Simon Harris answered questions on KCLR Live this morning... issues on the MRI scanner at St Luke's, the ...
Kilkenny mother heartbroken after being denied access to Spinraza for her son
Carol Brennan from Kilkenny, who believes her 6 year old son could benefit from Spinraza, says price shouldn't come into ...
Kilkenny mother meets elected members in bid to access Spinraza drug for her son
The medication would make Isaac's life a lot easier and their family life in general. Carol says it would make ...
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